Copyright ©  Living With A Stoma  -  2010-2017


A Guide To Living With A Stoma


LIVING WITH A STOMA




SUPPLIERS


SUPPORT


ACCESSORIES


LIFESTYLE


TESTIMONIALS




LIVING WITH A STOMA

MORE FOR YOU


DIET


GLOSSARY


REFERENCE


UPDATES


TESTIMONIALS









jean@living-with-a-stoma.co.uk

Mail: jean@living-with-a-stoma.co.uk

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DISCLAIMER


100% accuracy at time of writing cannot be guaranteed.  A listing in this website is provided for informational purposes only, and does not mean it is an endorsement.  All companies listed are tried at the reader’s own risk.  All information provided is intended as a supplement to any professional help already

given.  Before acting on suggestions from anyone, ostomates are advised to check with a doctor or stoma care nurse that the course of action is suitable

for them. Whilst every care is taken, the author will not be held responsible.


SUPPORT

#top





Action On Bladder Cancer,

c/o ABC Secretariat,

Right Angle Communications,

Barley Mow Centre,

10 Barley Mow Passage,

London.

W4 4PH









Website

Email


www.actiononbladdercancer.org

abc@rightangleuk.com


The only UK charity purely focused on improving the lives of

people with bladder cancer.







All About Bowel Surgery.






Website

www.allaboutbowelsurgery.com

A website aimed at supplementing information, which a patient

has been given.  






Beating Bowel Cancer,

Harlequin House,

7 High Street,

Teddington, Middlesex.

TW11 8EE





Website

Email

Telephone

Nurse Helpline

www.beatingbowelcancer.org

info@beatingbowelcancer.org

08450 719 300

0208 973 0011

Works to raise awareness of symptoms, promote early

diagnosis and encourage open access to treatment choice.





Bladder And Bowel Foundation,

(B&BF),

SATRA Innovation Park,

Rockingham Road,

Kettering,

Northants.

NN16 9JH








Website

Email

Telephone

Helpline

www.bladderandbowelfoundation.org

info@bladderandbowelfoundation.org

01536 533 255

0845 345 0165 (specialist nurse)

Information/support for people with bladder and bowel control problems, their carers, families and healthcare professionals.                   









British Skin Foundation,

4 Fitzroy Square,

London.

W1T 5HQ












Website

Email

Telephone


www.britishskinfoundation.org.uk

admin@britishskinfoundation.org.uk

0207 391 6341

UK charity dedicated to funding research into skin disease and

skin cancer.  100% of donations funds top quality research.

As they are not medically trained, unable to give advice on skin problems.






Core,

3 St. Andrews Place,

London.

NW1 4LB







Website

Email

Telephone

www.corecharity.org.uk

info@corecharity.org.uk

0207 486 0341 (for information only - not a helpline).

Charity researching range of gut, liver, intestinal and bowel illnesses.  Provides fact sheets and leaflets.

Core is the working name of the Digestive

Disorders Foundation.





Crohn’s In Childhood Research Association,

(CICRA),

Parkgate House,

356 West Barnes Lane,

Motspur Park,

Surrey.

KT3 6NB








Website

Email

Telephone

www.cicra.org

support@cicra.org

0208 949 6209

Dedicated to creating a wider understanding of Crohn’s Disease and Ulcerative Colitis, as it affects children and young adults.






forCrohns,

23 Leavesden Road,

Stanmore,

Middlesex.

HA7 3RQ








Website

Email

Telephone

www.forcrohns.org

info@forcrohns.org

0208 954 0277

Charity funding research, which contributes to finding a cure for Crohn’s Disease, as well as raising awareness of the disease.




Hirschsprungs & Motility

Disorders Support Network,

(HMDSN),

Mill House,

Thrumster,

Wick,

Caithness.

KW1 5SE








Website

Email

Telephone

www.hirschsprungs.info

gerry@hirschsprungs.info

07935 787 776

Helps ordinary people and families, who suffer from Hirschsprungs Disease and other bowel motility problems.






Maggie’s,

The Stables,

Western General Hospital,

Crewe Road,

Edinburgh.

EH4 2XU












Website

Email

Freephone



www.maggiescentres.org

enquiries@maggiescentres.org

0300 123 1801

Maggie’s Centres are places, which can give the emotional, practical and social support that people with cancer need.

Located in the grounds of major NHS cancer hospitals.







Lynn’s Bowel Cancer Campaign,

39 Crown Road,

Twickenham.

TW1 1EJ






Website

Email

Telephone

Symptom’s Hotline

www.bowelcancer.tv

info@bowelcancer.tv

0208 892 2409

0870 242 4870

Offers advice to anyone affected by bowel cancer, including symptoms and prevention.







Macmillan Cancer Support,

89 Albert Embankment,

London.

SE1 7UQ











Website

Freephone - Cancer

Support Specialists


www.macmillan.org.uk


0808 808 00 00

Provides practical, medical and financial support for those affected by cancer, and campaign for better cancer care.







Motor Neurone Disease Association,

(MND Association),

P.O. Box 246,

Northampton.

NN1 2PR








Website

Email

Telephone

MND Connect

www.mndassociation.org

enquiries@mndassociation.org

01604 250 505

08457 626 262

Organisation dedicated to the support and advice for people with Motor Neurone Disease and those who care for them.

MND Connect -

Support And Information Line.







Mitrofanoff Support,

1052 Christchurch Road,

Bournemouth,

Dorset.

BH7 6DS











Website

Email

Telephone

www.mitrofanoffsupport.org.uk

info@mitrofanoffsupport.org.uk

01202 937 530


Provides emotional support, guidance and reassurance to

anyone who has, or is about to have a Mitrofanoff.

Working with hospital trusts to give a patient perspective.








Net Doctor.








Website

www.netdoctor.co.uk


UK medical information service on the internet.







Patient.co.uk






Website

www.patient.co.uk


Trusted medical information and support.






Nutritionist Resource,

Coliseum,

Riverside Way,

Camberley,

Surrey.

GU15 3YL








Website

Email

Telephone  

www.nutritionist-resource.org.uk

info@nutritionist-resource.org.uk

0844 8030 244

Provides information and connects with nutritionists, who are registered with a recognised professional body.







Ovacome,

P. O. Box 6294,

London.

W1A 7WJ







Website

Email

Telephone

Helpline

www.ovacome.org.uk

ovacome@ovacome.org.uk

0207 299 6650

0845 371 0554


Support organisation for those affected by ovarian cancer.






Prostate Help Association,

(PHA),

Langworth,

Lincoln.

LN3 5DF







Website

Email

www.bph.org.uk

philip@bph.org.uk


Website providing information about prostate disease.





Spinal Injuries Association,

SIA House,

2 Trueman Place,

Oldbrook,

Milton Keynes.

MK6 2HH









Website

Email

Telephone

Freephone Advice Line

Office   

www.spinal.co.uk

sia@spinal.co.uk

01908 604 0191

0800 980 0501

0845 070 6911

User-led organisation supporting all those affected by spinal

cord injury, including family and friends.








VACTERL Association Support Group.






Website

Email

Telephone

www.vacterl-association.org.uk

info@vacterl-association.org.uk

01752 482 568

Support group, based in the UK, dedicated to helping families affected by VACTERL/VATER association.





The Cystitis & Overactive

Bladder Foundation,

(COB),

Kings Court,

17 School Road,

Birmingham.

B28 8JG











Website

Email

Telephone

www.cobfoundation.org

info@cobfoundation.org

0121 702 0820

The Cystitis & Overactive Bladder Foundation provides information and support to sufferers of bladder problems.






FAP Gene Support Group,

12 Freeby Close,

Melton Mowbray,

Leicestershire.

LE13 1HN









Website

Email

Telephone  

www.fapgene.com

mickmason@fapgene.com

01664 566 101

A support group for anyone suffering from the condition

Familial Adenomatous Polyposis.






Scottish Spina Bifida Association,

The Dan Young Building,

6 Craighalbert Way,

Cumbernauld,

North Lanarkshire.

G68 0LS









Website

Email

Telephone (general)

Telephone (helpline)

www.ssba.org.uk

mail@ssba.org.uk

01236 794 500

08459 111 112

Scotland's voice for spina bifida, hydrocephalus and

related conditions.







The British Hernia Centre,

Hospital Of St. John & St. Elizabeth,

60 Grove End Road,

St. John’s Wood,

London.

NW8 9NH







Website

Email

Telephone

www.hernia.org

experts@hernia.org

0208 201 7000

The UK’s leading specialists in all abdominal wall hernias,

including stoma (parastomal) hernias.






Cancer Research UK,

Angel Building,

407 St. John Street,

London.

EC1V 4AD







Website

Telephone

Freephone

www.cancerresearchuk.org

0207 242 0200

0808 800 4040


UK charity dedicated to cancer research.







CancerHelp UK,

61 Lincoln’s Inn Fields,

London.

WC2A 3PX








Website

Freephone

www.cancerhelp.org.uk

0808 800 4040

Reliable, easy-to-understand, patient information from

Cancer Research UK.







Bowel Cancer UK,

Willcox House,

140-148 Borough High Street,

London.

SE1 1LB






Website

Email

Telephone

Helpline

www.bowelcanceruk.org.uk

admin@bowelcanceruk.org.uk

0207 940 1760

0800 840 3540

Charity raising awareness of bowel cancer, campaigning for best treatment and care, and providing practical support and advice.







PolyPeople,

137 Pennymead,

Harlow,

Essex.

CM20 3JB








Website

Email


www.polypeople.net

contactus@polypeople.net


A patient support group dedicated to assisting people

suffering from FAP/Familial Adenomatous Polyposis.

UK

MEDICAL







Crohn’s Disease & Ulcerative Colitis.








Website

Email

www.crohns.org.uk

info@crohns.org.uk

A resource to help patients and healthcare professionals in the management and treatment of Inflammatory Bowel Diseases.






MS-UK,

Unsworth House,

Hythe Quay,

Colchester,

Essex.

CO2 8JF








Website

Email

Telephone

Advice Line

www.ms-uk.org

info@ms-uk.org

01206 226 500

0800 783 0518


Dedicated to giving support and information to anyone

affected by Multiple Sclerosis.






MS Trust,

Spirella Building,

Bridge Road,

Letchworth,

Hertfordshire.

SG6 4ET








Website

Email

Telephone

www.mstrust.org.uk

info@mstrust.org.uk

01462 476 700

Charity providing information, education, research and support

for anyone affected by Multiple Sclerosis.








NHS 111 Service.






Website

Telephone

www.nhs.uk/111

111


Offers medical help fast, but it is not a 999 emergency.


Further Information






The Stroke Association,

Stroke House,

240 City Road,

London.

EC1V 2PR






Website

Email

Telephone

Helpline

www.stroke.org.uk

info@stroke.org.uk

0207 566 0300

0303 303 3100

The Stroke Association works for a world where there are fewer strokes, and all those touched by stroke get the help they need.







The IBS Network,

Unit 1.12 SOAR Works,

14 Knutton Road,

Sheffield.

S5 9NU











Website

Email

Telephone

Helpline

www.theibsnetwork.org

info@theibsnetwork.org

0114 272 3253

0872 300 4537

National charity for Irritable Bowel Syndrome, offering information, support, advice, can’t wait cards and membership.

Medical Helpline open: Tuesdays, Wednesdays

and Thursdays,

7.00 p.m. to 9.00 p.m.







Penny Brohn Cancer Care,

Chapel Pill Lane,

Pill,

Bristol,

BS20 0HH







Website

Email

Telephone

Helpline

www.pennybrohncancercare.org

info@pennybrohn.org

01275 370 100

0845 123 2310


Offers services designed to work alongside standard cancer treatment, and support all aspects of health and well being.