SEARCH ‘A Guide To Living With A Stoma’
DISCLAIMER
100% accuracy at time of writing cannot be guaranteed. A listing in this website is provided for informational purposes only, and does not mean it is an endorsement. All companies listed are tried at the reader’s own risk. All information provided is intended as a supplement to any professional help already
given. Before acting on suggestions from anyone, ostomates are advised to check with a doctor or stoma care nurse that the course of action is suitable
for them. Whilst every care is taken, the author will not be held responsible.
SUPPORT
There are numerous support associations, who can make a vast difference to the life of ostomates. Many are registered charities, primarily run by volunteers. The benefits to stoma patients, who join a support association, are invaluable. It is always useful to speak to other patients to learn more about living with a stoma, to help overcome obstacles, and to share information and resources.
In addition, there are support groups, many of which have local branches. Support groups offer support, advice and information, not only to the patients themselves, but also to their families, friends, carers and health professionals.
There are a range of organisations, who can provide a specific type of support, and some of these are
listed in this section of the website.
There are many ostomy-
support groups (both national and regional), etc. These events are varied, and could be exhibitions, meetings, social events, or just an informal chat with other ostomates.
All ostomates receive a very warm welcome, along with their families, friends and carers.
Some of these events are listed by region, for convenience. More are being added
on a regular basis.
EVENTS
Apart from the Medical and Ostomy support groups, there are many other support groups, who
may be able to help in specific circumstances -
GENERAL
The UK and Worldwide sections list some of the many support groups, charities, etc., for various
medical conditions, which may be relevant to a stoma patient. These can provide individual and
group support, for patients, families and their carers. Also, there are many local support groups
and charities, which are located throughout the UK. On request, local stoma care nurses can give ostomates the relevant details.
MEDICAL
There are many ostomy-
support groups (both national and regional), etc. These events are varied, but sometimes they
come under the heading of an Open Day.
All ostomates receive a very warm welcome, along with their families, friends and carers.
Some of these types of event are listed in this section. More are being added on a regular basis.
OPEN DAYS
In the UK, there are three main stoma patient associations, the Colostomy Association, the Ileostomy
and Internal Pouch Support Group and the Urostomy Association, depending on the type of stoma. It
is a good idea to join one of these associations, as becoming a member offers numerous benefits. In addition to head office, some of the stoma patient associations have branches/representation
throughout the country and can give help and counselling, whenever it is requested. Often these
local representatives are volunteer ostomates.
Furthermore, there are other organisations, regional support groups and websites throughout the
world, which offer help for stoma patients.
OSTOMY
In the world, there are many children and babies, who have stomas. Each child’s care needs are different in the same way that every adult ostomate is different. There are support groups, who specialise in helping parents, young adults, children and babies in various ways.
PAEDIATRIC
| UK |
| UK - PAEDIATRIC |
| WORLDWIDE |
| WORLDWIDE - PAEDIATRIC |
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