Copyright ©  Living With A Stoma  -  2010-2017


A Guide To Living With A Stoma


LIVING WITH A STOMA




SUPPLIERS


SUPPORT


ACCESSORIES


LIFESTYLE


TESTIMONIALS




LIVING WITH A STOMA

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GLOSSARY


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DISCLAIMER


100% accuracy at time of writing cannot be guaranteed.  A listing in this website is provided for informational purposes only, and does not mean it is an endorsement.  All companies listed are tried at the reader’s own risk.  All information provided is intended as a supplement to any professional help already

given.  Before acting on suggestions from anyone, ostomates are advised to check with a doctor or stoma care nurse that the course of action is suitable

for them. Whilst every care is taken, the author will not be held responsible.


SUPPORT

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There are numerous support associations, who can make a vast difference to the life of ostomates.  Many are registered charities, primarily run by volunteers.  The benefits to stoma patients, who join a support association, are invaluable.  It is always useful to speak to other patients to learn more about living with a stoma, to help overcome obstacles, and to share information and resources.


In addition, there are support groups, many of which have local branches.  Support groups offer support, advice and information, not only to the patients themselves, but also to their families, friends, carers and health professionals.


There are a range of organisations, who can provide a specific type of support, and some of these are

listed in this section of the website.   














There are many ostomy-related events held across the UK, throughout the year, by companies,

support groups (both national and regional), etc.  These events are varied, and could be exhibitions, meetings, social events, or just an informal chat with other ostomates.


All ostomates receive a very warm welcome, along with their families, friends and carers.


Some of these events are listed by region, for convenience.  More are being added

on a regular basis.


Support UK, Events  



EVENTS





Apart from the Medical and Ostomy support groups, there are many other support groups, who

may be able to help in specific circumstances - age-related issues, disability, financial, relationship problems, etc.


Support UK, General

Support Worldwide, General  

GENERAL





The UK and Worldwide sections list some of the many support groups, charities, etc., for various

medical conditions, which may be relevant to a stoma patient.  These can provide individual and

group support, for patients, families and their carers.  Also, there are many local support groups

and charities, which are located throughout the UK.  On request, local stoma care nurses can give ostomates the relevant details.


Support UK, Medical

Support Worldwide, Medical



MEDICAL





There are many ostomy-related events held across the UK, throughout the year, by companies,

support groups (both national and regional), etc.  These events are varied, but sometimes they

come under the heading of an Open Day.


All ostomates receive a very warm welcome, along with their families, friends and carers.


Some of these types of event are listed in this section.  More are being added on a regular basis.


Support UK, Open Days


OPEN DAYS





In the UK, there are three main stoma patient associations, the Colostomy Association, the Ileostomy

and Internal Pouch Support Group and the Urostomy Association, depending on the type of stoma.  It

is a good idea to join one of these associations, as becoming a member offers numerous benefits.  In addition to head office, some of the stoma patient associations have branches/representation

throughout the country and can give help and counselling, whenever it is requested.  Often these

local representatives are volunteer ostomates.


Furthermore, there are other organisations, regional support groups and websites throughout the

world, which offer help for stoma patients.


Support UK, Ostomy National

Support UK, Ostomy Regional


Support Worldwide, Ostomy National

Support Worldwide, Ostomy Regional

OSTOMY





In the world, there are many children and babies, who have stomas.  Each child’s care needs are different in the same way that every adult ostomate is different.  There are support groups, who specialise in helping parents, young adults, children and babies in various ways.


Support UK, Paediatric

Support Worldwide, Paediatric  

PAEDIATRIC